Ep 34 - Breastfeeding Stories … Breastfeeding a baby with a rare metabolic disorder
Yolanda shares her journey of breastfeeding her baby after a PKU diagnosis, finding strength, support, and hope along the way.
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Podcast information
Breastfeeding Stories … Breastfeeding a baby with a rare metabolic disorder
When baby Hudson was five days old, new mum Yolanda got a phone call that changed everything.
His heel prick test had detected a rare genetic condition called Phenylketonuria, or PKU.
In this episode, Jessica and Simone talk with Yolanda about navigating breastfeeding when your baby has PKU. The fear, the learning curve, and the support that made it possible.
Paediatric dietitian Erin Mullane also joins to explain what PKU means for feeding and nutrition, and how families can make breastfeeding work under complex circumstances.
Links to resources and information discussed in this episode:
- Metabolic Dietary Disorders Association (MDDA)
- Better Health Channel - Phenylketonuria (PKU)
- The PKU Handbook
- Australasian Society for Inborn Errors of Metabolism
- Newborn screening: what to expect
Credits: This episode is presented by Jessica Leonard and Simone Casey. Audio editing and show notes by Jessica Leonard. Transcription by Leanne Matthews. Produced by Belinda Chambers, Jessica Leonard and Simone Casey. We thank Yolanda for sharing her story with us.
